Skip to Content Skip to Navigation

Amanda's Journey Foundation: News

Five Years! - November 17, 2013



Return To Double H - August 20, 2013

You can read elsewhere on this site how much the Double H Hole-In-The-Woods Camp meant to Amanda (and how much it has meant to countless other children with life-threatening illnesses.)

Amanda's big sis Carolyn has now spent a second summer working with kids at Double H, and she enjoyed every exhausting minute of it. Way to go, Carolyn!

Carolyn_HH.jpg


Jacki Talks Mito On Public Television - July 5, 2013

Jacki Perrotta was among several guests who discussed Mito on WMHT's Health Link with Benita Zahn. Click below to view the program:




Volunteers, Nothing But Volunteers - June 4, 2013

Folks who donate to AJF should know that there are no offices, no company cars, no salaried employees, etc., nothing but unpaid volunteers. And we can always use more, so send us an email or hit us up on Facebook!

AJF sends greetings to new AJF "crew member" Debbie Pakatar, and a bids a grateful and fond farewell to original board member Karen DuJack. Best wishes to Karen in all her coming endeavors!

BMkDUJACK.jpg



November update - November 14, 2012




A Chance To Get Away! - August 16, 2012

Sure, the weather is pretty good in the Northeast right about now, but winter is always lurking around the corner. A very generous man by the name of Billy O'Neil has teamed up with AJF to create a vacation raffle with St. Petersburgh, Florida as it's destination. Billy is putting up his outstanding condo for a week, and AJF is going to supply a Southwest Airlines gift card. This video can tell you more. Why not take a chance?




Meet The Doherty's - July 31, 2012

The 2012 AJF Mito Spotlight Family hail from southern Columbia County. It is a long drive to when they need to visit Dr. Adams and his staff at the Albany Medical Center, but it is still the closest place to go when one of the kids needs help (they have also travelled to Boston & Philidelphia).

The Doherty's are mom Mary, dad Matthew, Mary Grace who is 4, Andy who is 5, Colleen who is 7, and big sis Erin who is 13. Watch for more info and videos on the Doherty's in the coming weeks!

Doherty_5882_sml.jpg



Another Perrotta at Double H Camp - July 2, 2012

College student Carolyn Perrotta (Amanda's big sis) is following in Amanda's footsteps...sort of. The Double H Hole in th Woods Camp is a vacation paradise for seriously ill children. Amanda could hardly say enough about how much she loved her oppotunity to spend some time there.

Carolyn was thrilled to land a summer job at Double H, and is now assisting other children in having the time of their young lives. Reports are it is hard (and sometimes heartbreaking) work, but it is very, very gratifying.

Way to go Carolyn! Your sister must be smiling! 

Sisters4audioPage.jpg



Amanda's Journey...to D.C.! - June 22, 2012

DC_0_crop.jpg

Earlier this month Jacki & Sonya headed to the greater D.C. area for the United Mitochondrial Disease Foundation's annual conference. This year's event featured a day of lobbying on Capitol Hill. One highlight of the trip was meeting young Hannah H., a wonderful teen from Virginia who was attending with her mom.

DC_4_crop.jpg 


McKownville UMC Hosts Benefit Concert - May 21, 2012

On May 18th the Mckownville United Methodist Church hosted a concert to benefit Amanda's Journey. Headliners Lost Radio Rounders (longtime friends of AJF) brought along guests Bobby Long and Greg Haymes for an old time gospel program. Carolyn Perrotta sat in on one song and brought down the house (which included Abby the service dog). Just listen to the applause at the end of this video!





Love and support everywhere - October 4, 2011

Mito_Friends_1.jpg

In a journal entry from September 24, 2008 (Exactly three years before this year’s walk!), Amanda Perrotta wrote: “When you become ill, you instantly try to find other people who are going through the same thing. Let me tell from experience that finding adults/kids who have the same thing (illness) helps, but you also have to realize that you have family and friends that want to be there for you…I bet you will find love and support everywhere you go if you let people in on your illness.”

Mito_T_Shirt.jpg

Love and support for the Mito community were certainly on display at the third annual AJF Mito Walk at The Crossings of Colonie. You could see in the faces, and read it on the t-shirts. AJF volunteer Kristen Russell took these wonderful photos of “Mito kid” Emma and her good friend. The smiles (and the t-shirts) say it all!

Mito_Friends_2.jpg


Thanks for walking! - September 26, 2011

Thanks to all who participated in any way in our 3rd Mito Walk at the Crossings of Colonie. It was another great success, and the funds raised will stay here in upstate New York helping children with Mito and their caregivers. The Amanda's Journey Foundation is a small, local, all volunteer organization; and we could not put on events like the walk without the help of many wonderful and talented people.

2011Walk5687.jpg



  

"Spotlight" on the walk - September 12, 2011

MiteyMaddy.jpg

Andrew Beam of The Soptlight Newspapers has written an article on the upcoming walk. The article details the involvement of Katie and Frank Maclaren of Troy and their daughther Maddy. Check it out by clicking this link: http://www.spotlightnews.com/news/2011/sep/08/amandas-journey-takes-new-direction/

U.M.D.F. Conference 2011 - June 20, 2011

The Amanda's Journey crew is home from the U.M.D.F. Mitochondrial Medicine Conference in Schaumburg, IL. We met so many wonderful people: doctors, researchers, volunteers, and of course, adults and children dealing with Mito. As a "Mito mom", Jacki was able to help many other parents, both by sharing her experiences with Amanda, and by lending an ear to those who needed to tell their stories. It was a very moving and rewarding experience.

Chicago5633.jpg 

    

Generous Donation - June 7, 2011

The Amanda's Journey Foundation is grateful to Jo Lyn Borst for the donation of a Dell laptop computer. It will be put to good use next week when three AJF volunteers head to the Chicago for the United Mitochondrial Disease Foundation conference. Look for updates from the convention hall on this site and our Facebook page. 

Bowl-a-thon scores big! - March 8, 2011

The first AJF Bowl-a-thon was a great event, and the funds raised will help with the April 2nd Mito Awareness Day (see our calendar page). Thanks to all who bowled, volunteered, sponsored & bought those 50/50 tickets.

Bowl2398.jpg

Check out a gallery of pictures on our photo page, or hop on over to the Amanda's Journey Foundation Facebook page http://www.facebook.com/pages/Amandas-Journey-Foundation/168918343152861 and tell us about your experience on Saturday!

KidBowl2303.jpg

 

AJF on Facebook - February 1, 2011

For years there has been a wonderful Facebook page dedicated to Amanda (thanks Aunt Kim!), and we hope you have been there often.

Recently the Amanda's Journey Foundation launched its own Facebook page to keep folks up to date on the good work our volunteers are doing, and to find more talented and caring folks to work with us on our mission to assist those affected by diseases of the mitochondria.

Please check it out!

AJFsqr.jpg 

  

Come blog with AJF - November 6, 2010

Wonderful news!! Amanda's Journey Foundation blog page is now open for business!! Send us your questions and comments, or tell us if you have anything you would like to see the foundation do.     

AbbyMand134.jpg 

 

 

Amanda's Journey (and Abby) at the Library - October 16, 2010

Abby the Cairn terrier was among those in attendance at the William Sanford Library (Colonie, NY) on Thusday night as Jacki Perrotta addressed a small, but keenly interested group. The biggest news of the evening: Jacki announced that the family has found another of Amanda's handwritten journals.

ColLibraryGRP.jpg


  

We want to tell your story - October 4, 2010

If you have a family member dealing with a Mitochondrial Disease the Amanda's Journey Foundation would love to tell their story here on our website. This is particularly true if you live in our "neighborhood": New York's Capital Region, Mohawk Valley, and Southern Adirondack's; as well as Western Massachusetts and Southern Vermont.

2010WALK_127edit.jpg

Please e-mail us at amandasjourney08@gmail.com or see our Contact page. 


  

Walk Stories - Part Five - September 27, 2010

MiteyMaddy.jpg

Folks who attended the 2009 and 2010 Remembrance Walks have probably guessed that purple and green were Amanda’s favorite colors. After all, how could you miss all those t-shirts? But at both walks you should have also noted the sky blue tee’s of the “Mitey Maddy” team.

Maddy is a beautiful young girl with a winning smile who has a form of Mitochondrial Disease. Maddy also has plenty of friends and family eager to show their support, and we are looking forward to seeing even more blue t-shirts next year!

Walk Stories - Part Four - September 26, 2010

OCSkids.jpg

Amanda Perrotta’s big sis Carolyn is a graduate of the Oakwood Christian School in Troy, NY (Amanda herself briefly attended Oakwood). O.C.S. was represented at the 2nd Annual Remembrance Walk by well over two dozen students, teachers, parents and alumni.

The Oakwood crew painted faces, performed songs, created balloon animals, took pictures, helped to man booths, and so much more. A big thank you goes out to all the O.C.S. “Warriors” who are helping in the fight against Mito.

Walk Stories - Part Three - September 23, 2010

KaytMarra.jpg

At Saturday's walk, Kayt Marra of the Albany Medical Center presented a speech on behalf of Dr. Adams and the genetics staff. We thank her for her kind words about the Morrison, LaFond-Evans, and Perrotta families. Here are few a of her remarks regarding Amanda Perrotta:

  "She has given more back than she received in this life through her writing, her wit, her determination, and in her faith. In short, she’s that little snowball that is catching momentum as it comes down the hill. Each year more lives are touched, more people assisted, and most of all, people are given hope."

  "Above all, she was full of sunshine, and she left us her thoughts about her journey of life. She truly had an amazing way of getting around this thing called Mito; she enjoyed life, and she brought enjoyment to others. Mito, as bad as it is, never had a better ambassador."

Walk Stories - Part Two - September 22, 2010

CathyLaFondEvans.jpg

Last September, Cathy LaFond-Evans attended the first Remembrance Walk with her daughter Randi. Cathy also presided over the Adult Mito Forum at the 2nd Annual Mito Awareness Day held this past May. Sadly, Randi lost her battle with Mitochandrial Disease on July 25th of this year.

On Saturday at the Crossings Cathy walked in Randi's honor pushing her wheelchair and carrying a loving tribute to her dear daughter. Our thanks go out to Cathy for all she's done to promote awareness of Mito; like so many others, we know she's just begun to tell this story.

  

Walk Stories - Part One - September 21, 2010

TommysCousins.jpg

Tommy Morrison was just an infant when he passed away from Mito. The foundation created in his name has helped many local families cover their bills when medical expenses piled up. Tommy's cousins attended the 2nd Annual Remembrance Walk and were acknowledged for raising over $200 with a lemonade stand.

Kids helping kids; Tommy and Amanda are surely smiling. If your family is in need of financial assistance, contact the Thomas Patrick Morrison Foundation www.tpmfoundation.org

  

Next Page >>

RSS feed