Before you read these entries... 

The following are just a brief sampling of the journal entries of Amanda Perrotta. Before you read these entries you should know that the earliest ones are found at bottom of the page. For a chronological overview, start from there.

Amanda's journals contained errors in spelling, grammar, and punctuation. For the most part, these have not been changed. More journal entries are available on the "Audio" page, and on our flash player.

All are excerpts from "Amazing Amanda: My Journey Through Mito", by Amanda…

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"...you fought the good fight!" 

An excerpt from "Amazing Amanda: My Journey Through Mito".

“With my disease, I have to fight every second for what I want or need to do. Some friends I’ve made over the years fight harder than I’ll ever do.”



“When you can’t fight anymore and earn your angel wings, you still won the fight. God just wanted you to arrive a bit earlier then expected because you’re special. So, never worry that you didn’t win, because you fought the good fight!”

Love, Amanda B+

"No matter how hard you want to quit..." 

An excerpt from "Amazing Amanda: My Journey Through Mito".

“I want to fight this disease right to where I say ‘I can’t do this anymore!’ I’m not planning on doing that anytime soon either… No matter how hard you want to quit, don’t, because God might have so many lessons he has to teach you before you die. So the lesson for today is: never give up no matter how hard it gets.”

Love, Amanda B+



Brave Kids 

An excerpt from "Amazing Amanda: My Journey Through Mito". Amanda comes back stronger after a brief medically imposed online absence.  

“Hi everyone! It’s Amanda, back in action!”

I’ve been meaning to tell all of you who have an illness about one of my favorite sites called BraveKids. It has a child/teen forum, and it also has an adult one. I’ve been going there for three years now, and that forum is just GREAT! I’ve met so many friends through that. I just wanted to tell you all, in case anyone wants to…

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"We're the lucky ones." 

An excerpt from "Amazing Amanda: My Journey Through Mito". 

“I’ve had Mito for three years now, and I’m mad sometimes that I have it. I just found out why kids and adults that have done nothing bad in their lives have a life-threatening illness. I’m pretty sure God picked us because we’re the special ones who are going to change the world with our positive attitudes and how we approach things.”



 “We’re the ones who, one day will have to confront the Lord, and the Lord will clap and say ‘Thank you for changin…

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"The little things are the big things." 

An excerpt from "Amazing Amanda: My Journey Through Mito".

"The #1 thing I really want to teach people is that the smallest things in life are the biggest things. I learned this lesson the hard way."

"I went from Carolyn’s games being little to big in just one year. Last year, I really didn’t care about Carolyn’s basketball games. This year is totally different. I want to go to every single one I can get to. And now that I know that I can’t get to every single one, it hurts because I know that I missed my…

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Remembering the Taste 

An excerpt from "Amazing Amanda: My Journey Through Mito".

"Hi All!"

"Yesterday i felt VERYweak, so I didn't do too much, mostly just sleep all day. I was very hungry, though. The way I eat is unique.  I can have just about anything in my mouth and then I spit it out, just to get the taste and remember what each food tasted like."



There came a time when "Mito" robbed Amanda of her ability to swallow. Even after she could no longer eat "regular" food, Amanda continued to bake and cook for others!

Someone 2 Lean On 

An except from "Amazing Amanda: My Journey Through Mito". Amanda requests materials from her "Mito friends" to create a poster she would title "Someone 2 Lean On".

 

"Hey! I have a small favor for all of my Mito friends. I'm having a fundraiser for UMDF (United Mitochondrial Disease Foundation) and myself. Well, since mostly all of of you can't be here for it (unless you didn't tell me something), i thought of an idea. I'm going to get a HUGE poster board, and if every Mito friend of mine could could email…

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"The Cure for Mito is..." 

An excerpt from "Amazing Amanda: My Journey Through Mito".

"Hi! I have to tell you something. I just though of my own quote today! It will be on the bottom for my quote of the day. I don't know where it came from, but it just appeared in my brain. So i'm quite excited to share it."

"The Cure for Mito is living life." 

Amanda :-) B+

 Da & Amanda color eggs.

Amanda's philosophy expressed succinctly; we are here to live!

 

Medical Trouble & A Visit From A Service Dog 

An excerpt from "Amazing Amanda: My Journey Through Mito". After a tough night in the hospital, Amanda looks forward to a visit from a service dog who puts his paws together and bows his head when people pray. 

"Last night J-tube got clogged, so i didn't get any of my seizure meds...  i had headaches and auras all night, so i didn't get much sleep...i was tossing and turning all night. I'm just hanging in there for right now. Honor, the dog that prayed for me last week at this time is coming up later, so…

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